It is St. Patrick's Day and I will spend the day in Louisville, at a Silent Auction and Fashion Show. It is Leslie Rader's fundraiser that honors her daughter who died of Epidermolysis Bullosa.
Eight years ago, Leslie lost her daughter, Lauren. Afterwards, wanting to help other families struggling with EB, Leslie and her husband Bryan created the New Family Advocate Program through DebRA of America.
The New Family Advocate Program provides assistance to new EB families by sending a care package full of EB friendly wound care products, practical information regarding wound care and issues related to the care of an EB child. In addition, a home visit to the family by an experience EB caregiver can be arranged at the request of the family after bringing their baby home.
The Raders are amazing people who do incredible work. I am honored to support them, always.
The proceeds go to the DebRA programs that help families coping with EB,
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