The Butterfly Benefit

Epidermolysis Bullosa (EB) is a genetic skin condition in which the proteins of the skin are reduced, formed incorrectly or missing entirely. This results in blistering and wounds for those born with it. Depending on how severe the case is, it can be debilitating and even fatal. The children are "butterfly children" because their skin is as fragile as a butterfly's wings

Leslie Rader is a volunteer for DebRA of America (www.debra.org) and runs the New Family Advocate program that helps families who have a child with EB. Leslie and her husband Bryan got involved in EB after their second daughter, Lauren, was born with a fatal version of the disorder.

Today was the annual fundraiser Leslie has in Louisville Kentucky. Held at the Olmstead, the event included a silent auction, a fashion show, a quilt raffle and a nice lunch. The day was beautiful and the event was a huge success with over 200 people in attendance.

What a wonderful way to spend an afternoon.